As if it couldn’t get any worse. After fighting from March until May for Botox injections, we secured a donation from the manufacture in Canada for one round. Our hopes were to show our insurance company that the injections worked, that they would reconsider their decision. NO such luck. They wouldn’t even READ the letter…
Category Archives: Advocacy
Ordinary Acts, Extraordinary Love
My girls have been in school a few weeks now, settling in- despite the challenges- two weeks of record Arizona heat, new classrooms, new schedules and the same old pressure to eat snack, eat lunch, drink water and do their best work. Two different schools, two different nurses offices’ stocked with medicine and strategically planned…
We’re all Different…We’re all the Same
I’m writing a story with the child about the things that make us different from each other. I’m hoping this will be a soft entry to explaining her challenges and her triumphs over them in a way that is positive and yet open and honest. We’ve already talked about how even the people in our…
Let’s Try Something Different
Happy Monday!! I thought we could do something a little bit different this week. I’m always thrilled to interact with readers, so hopefully we can get some great conversations going. On my personal blog, I wrote about being sucker punched. Obviously I was well aware that my girls would start asking questions about Jillian’s cerebral…
The Big Secret…
I’ve been thinking a lot about how being a special needs parent has changed my life. Sure, there are sleepless nights, giant messes, and financial worries. Even typical parents have those problems! Yet, I have learned priceless lessons—some about me, some about the world. These…are the secrets that make this journey worth it all. 1….
Waiting for Treatment
I want to write to you to tell you all the positives that can come from special needs, or rather, what we learn and how we grow as individuals raising children with special needs. I want to give inspiration rather than sorrow, the promise of a rainbow after the clouds. But I can’t. Not because…
What To Do When Your Rope Breaks
My little girl is finally safe in a hospital – a mental hospital – and I’m losing my mind about it. I know some of you have kids with special needs of the neuropsychological kind, too. This post is for you. You know those moments when you wonder where God went? Because if He was…
What I Wish…
I came across an interesting article today. And by interesting, it made me roll my eyes and sigh audibly for my husband to say “what is your problem?!” The article in question can be found here- “What I wish parents knew”: Doctors, teachers, therapists, and more weigh in. If I had opted for a longer title,…
The Sand Trap
I met a mom at the park the other day. Somehow I don’t think we’ll be new best friends. It all started when my kids decided to play in the sand area, and I settled in the shade with my book. The child asked if I had brought her bucket and shovel and I told…
V E N T I N G !!!
I try to keep my blog posts positive and informative … but today I must VENT. Thanks for listening!