I left my 2yo medically fragile son for five days…count ’em five days AND nights, to attend BlogHer’10 in New York City. It was business, it was pleasure, it was exhausting…you name it – I felt it. Mostly I felt terribly guilty about going, but given the awesome opportunity I just felt I could not pass it…
Category Archives: Day In And Day Out
Where Did You Go?
If you leave me now You’ll take away the biggest part of me Ooo oh, no, baby please don’t go And if you leave me now You’ll take away the very heart of me Ooo oh, no, baby please don’t go. Ooo, oh, girl, I just want you to stay (Peter Cetera, 1976) When Ashley…
Making the Tough Calls
When does the risk outweigh the benefit? How do you decide if medical treatments for your child are more harm than good? Making the tough calls has never been easy, and apparently the weight of this burden never goes away. I remember my son, 4 months old, critcially ill and crying incessantly. Crying because he…
The Best Job in the World
This is the 9th day of a very difficult hospitalization and surgery for my newest son, Ronnie. I have been spending every waking moment at the hospital, and fortunately, the end is in sight. I believe Ronnie may be able to come home tomorrow. I hope you don’t mind that I pulled a post out…
Oopsie! Forgot to have a life
Last night, at 10:10 p.m., I stood in front of my bathroom mirror and plucked my brows. There were a lot of scraggly hairs, as I haven’t gotten around to doing this for a while, and I found it kind of zen to tweeze away. But as I stood there peering at my reflection, it…
Out Sick
Just wanted to make a quick post to account for my absence this week! Mama is sick. Traveling from Texas to Ohio and back again in three days has wreaked havoc on my allergies, leaving me with a sinus cold 🙁 . I’m on the mend though and will back in full force soon! Y’all…
Today’s Hero
Dear Soldier in Panera, We were waiting to grab a bite of lunch. Of course, we made it “to-go”, because Jack doesn’t eat and hates being around food. The line continued to grow, and you stepped in front of us to grab your order. My son, who is completely enamored by the “pow-pow men” (otherwise…
a different sense of humor
When your kids a beyond the norm, you have to adapt. There is the obvious rigorous schedule of meds, therapy, stretching, speech exercises, feedings and freak out. But there is more. Over the years, I have noticed that parents of kids with special needs have a common thread with another part of our society. I…
The Difference A Week Can Make
What a difference a week can make! Last week I was looking toward Monday with apprehension, even dread. We were all but certain that our little man was to be diagnosed with a rare bone disorder that would probably require surgery. Pessimists? Realists? I’m not sure. After 3 years of bad news, it’s sometimes hard…
The Love Nest
Being new to 5MSN, I wanted to introduce myself to you, in a way that brought you close to my… bedroom? I have no shame! That’s right, we are going straight to the master suite…the place where the magic happens! (Hey, I made the bed for the picture! That’s an accomplishment in and of itself!)…