I know I will love it no matter what it is, because it will be from the child, her way of telling me, “I love you, Mama.”
Category Archives: Family Life
The Hardest Word I’ve Ever Said
Seven years. Over a thousand hours at hospitals and specialist appointments. Countless interventions at home. And it turns out the most important word to help my daughter’s treatment is this: NO. No… we’re not doing a nineteenth round of medication adjustments. It’s time for hospitalization. No… I won’t take her home from the hospital and…
The Weary Woman..
The other day, I was overcome with emotion when I read what our friend Tammy said on her blog. (I’ll wait for you to come back…) This is such a sensitive topic. And one that is so often overlooked. We, regardless of situation, are still human. We have bad days. We have moments when we’re…
Special Exposure Wednesday – Took Over
Sorry I’m late but as you can see, somebody took over my laptop, 😉 Share what you managed to capture this week. Please spread the comment love around. Thank you.
Wounding Words, Wondrous Words
I almost couldn’t hear it when she spoke. Words uttered under breath, understood loud and clear. “You’re so late,” she rolls her eyes, clicks her tongue in disapproval. I smile anyway, pass by, walk my daughter to class. Fifteen minutes after the bell rang, we’re entering campus. The words rattle me again. But not…
What Really Matters
I don’t know about all of you, but I’m feeling a bit overwhelmed again. Thanksgiving went better than could ever be expected, and throughout the weeks leading up to it and immediately after, I held everything else at arm’s length. I have never been a “Black Friday” participant, and this year more than ever we’re…
Balancing Journey vs. Destination Mindset With Our Kids
“It is good to have an end to journey toward; but it is the journey that matters in the end.” – Ursula K LeGuin I think we as parents of special needs understand this more than any other parents in the world. And even still, I fight this truth so much. As someone who’s good…
Bullying and Special Needs
Last week Grandma visited us. This week we’re visiting Grandma. Things are still going well (hooray for new medicine!) but this will be short and sweet if only because our computer access here is limited, and any minute now five people will be asking me for their breakfast. I wanted to let you all know…
What a Difference
I’ve had emotional whiplash all week. Grandma is visiting us this week. In case you don’t know the significance of those words you can read the worst part of it here. I’ve written about our struggles with her before. Turns out she does not have Alzheimers or dementia, per se, but the neurological damage she…
Special Needs Toy Guide
I have been working on a toy guide for special needs kids for some time. I pitched the idea to TimetoPlaymag.com and they were just as excited as I was about it. Basically, how this guide differs from others out there, is it is compiled 100% by a mom of a special needs kid. My…