Written on
December 11, 2010 by
Tammie
I have this dream for all of us, I dream that one day we all can walk in to “Our Toy Store” and find our kids playing in the aisles. That there are toys available to try and see if they’d work for our children. Where we’re not ordering from catalogs at home, but instead…
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Written on
December 3, 2010 by
Chaney
I have not formally introduced myself. My name is Chaney. I am Mary’s mom. Mary turned 5 in October. She loves music, horses, Dora and going outside. Mary uses a DynaVox VMax for the majority of her communication. She also has a trach and a g-tube. Mary is diagnosed with Arthrogryposis, Agenesis of the Corpus…
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Written on
November 28, 2010 by
Jill
I’m going to use my next couple of posts to talk about the tools we are using with J. I am in no way a medical expert or therapist; I’m only sharing what we have found to assist my daughter. At 20 months old, J is at a 6-9 month level for speech. She knows…
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Written on
November 26, 2010 by
Chaney
I am a musician. I am a woman, a mom, a therapist, an advocate. a nurse, a chauffer, a maid and much more. But I am also a musician. I take any words and make them into a song. Whether the words are actually from a song or not, I can sing it. One song I think…
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Written on
November 23, 2010 by
Lee
For the past 20 years my daughter Melissa has used a NG tube as her primary method of feeding. There has always been much controversy about the use of NG vs. G-Tubes. My story offers our experiences.
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Written on
November 19, 2010 by
Chaney
I hate these words “lets get some lab work.” My daughter, Mary, is a terrible stick. Her blood flows sooo slowly. Her veins collapse and they are hard to see in the first place. There has been one person at the children’s hospital that has been able to stick her on the first try, but do…
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Written on
November 12, 2010 by
Chaney
Working in the special education field can be challenging at times, but I have never looked at it that way. And it’s no wonder why: I grew up in a household with a child who required special education. Except, her education didn’t seem weird or outcast-like. It totally made sense. I guess it was because…
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Being new to 5MSN, I wanted to introduce myself to you, in a way that brought you close to my… bedroom? I have no shame! That’s right, we are going straight to the master suite…the place where the magic happens! (Hey, I made the bed for the picture! That’s an accomplishment in and of itself!)…
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Written on
July 22, 2010 by
Janis
You know how you know “something” is not quite right, call it your “mommy gut” kicking in. But all around you doctors and therapists purse their lips together and shake their heads. They have been shaking their heads about this one for about 2 years.
Finally this week his OT is admitting, well he “might” have a “slight” problem. To me thats like being “a little pregnant”…either you are or you are not. There is no room for middle ground.
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I attended a baby shower this past weekend that was a bit unconventional. The mom-to-be is a woman who worked after school with my daughter, Ashley. She is also a high school special education teacher. Dad-to-be works at the same high school and assists students with special needs find supported employment. They seem to be…
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