It’s a typical school day morning, and I am in the kitchen double checking Zoe’s lunch bag, snack bag, toiletry bag- loading her backpack . I glance up, over the kitchen counter, just in time to see Zoe, who is hovering nearby in her walker. She is smiling and elaborately shaking her groove thing to…
Monthly Archives: March 2011
BELIEVE! No One Can Know the Limitations of Another
We are in the process of formalizing a diagnosis of Attention Deficit Disorder with secondary Anxiety Disorder (at-risk for depression) for my “gifted” 9-year-old daughter. For me, this process began more than 2 years ago, brought to light by the abusive treatment she suffered at the hands of her 2nd grade teacher who drove her to tears…
Is that too much to ask?
This week my husband’s grandmother passed away. She was 93 year old, never took more than a multi-vitamin in her life. She did however, several years back, begin her journey with Alzheimer’s Disease. It was a long journey, spending 10 years in a nursing home. She had 5 children, 12 grandchildren…and so many great grand…
How do you do it?
Being the mom of a Super Hero isn’t easy! There are the people who see you coming, and run to the other side of the street avoid you so as to not get in your way. Others give their unsolicited opinions… The third group ask questions…brutal, hurtful, sometimes ridiculous, questions. My favorite this week: “I…
The Safety Dance
Well, our little Houdini is at it again. We try to keep it safe and locked down around here, but the truth is he is getting older and bigger and smarter and he’s figuring it all out. See, most devices and locks and whatnot are for BABY PROOFING. Not IAN PROOFING. Even autism-specific products. We…
It Will Come
“It will come.” Three simple words meant as encouragement. Meant to give hope. They don’t. In fact, often they are received as a dismissal. As a means of telling me it’s not a big deal. Because I know this phrase is not meant in the way I perceive it, I simply smile and say, “I…
Sleep Perchance to Dream
Last night was one of those nights. Daddy had a meeting so I put all the kids to bed, then laid on the floor doing Facebook until the twins dropped off to sleep, except I dropped off to sleep, too. I know I’m really wiped out when I wake up on the cold floor at…
Living on Borrowed Time
Medical advances are a gift of life. Today, it is no surprise that a baby born with a life-threatening medical condition survives. Yet we wonder about the life expectancy of this new “saved generation”. Are they LIVING ON BORROWED TIME? Don’t worry. Just cherish every moment of every day that we share with them!
Reflections In Spring…We’ve Come A Long Way
How are we doing? It’s on my mind. Not for any particular reason except that spring is around the corner, and this is the kind of thought process I go through each spring. You see, spring is a time of renewal and while others clean, which I might find a way to get my hands…
Waiting. And why it’s not so bad.
Raise your hand if you love to wait! Yeah, me neither. We spend lots of time waiting as parents with special needs kids. Waiting for things like doctor’s visits, referrals, our children’s therapies to take, results of the last lab work-up… For the past week we’ve been waiting with one of our daughters – waiting…