This week, I’ve read lots of blog posts and memes about Mother’s Day. Some of them are pretty dead on accurate, and others hurt my heart. Lots of them are about what mother’s really want for Mother’s Day—things like for children to close the doors, pick up socks, and so on. So as I was…
Category Archives: Cerebral Palsy
How to Save a Life
“And I would have stayed up with you all night…” (The Fray) Funny…my nights are filled with constant coughing. Wet washcloths to the forehead. Pulse oximetry. Puking of mucus. Pedialyte. Medication. Pillows. My little dude is not doing so hot. His lungs aren’t doing their job very well. There’s Lysol, medications, inhalers, nebulizers,…
The Beauty in the Beast
We, lovingly, call Jack “The Beast” sometimes. We don’t mean it in a derogatory way at all. Just in a way that we all know is true— he’s kinda Beastly (he’s a growler…loves to growl all the time when we’re out. Growls at old ladies, at kids, at dogs…). Sometimes he’s “Beastly” or “My Beasty…
Faith and Hope and Love.
The thing about faith is that…it’s not transient. You either have it or you don’t. You don’t have to believe in the God I believe in to have faith either. You can have faith in lots of things–doctors, teachers, friends. To have faith, you have to trust. A lot. Believe. A lot. So where does…
As They Grow…
I am the first to admit that March 7, 2007, was one of the toughest days of my life. I sat, holding the baby that only a week prior was declared “mine” in a court of law, while a neurologist told me my son had a diagnosis that changed his life forever. I felt numb….
Special Schools
This week has been one of those weeks where my emotions have gone from elation to fear to peace—and then back again! It is time for Jack to head to school. In the past, I was determined that the only way he was going to do school was with me by his side (meaning: home…
Weddings (and other such events)
Tomorrow my brother is getting married. In a quiet, small gathering. On a boat. At Disney World. Now, while most people think this sounds romantic and lovely, I am a nervous wreck. My brother loves my son no matter what; however, if he decides to melt down or scream or narrate the entire event,…
It’s POTTY TIME!!!!
A few years ago, I fell in love with Signing Time. Jack was struggling to do much more than scream and I was increasingly frustrated. In a last ditch effort, I bought some DVDs and prayed that he would communicate with me. Slowly, he began to sign (things like more and done) and I felt…
Message for ALL Mom’s.. LOVE your kids, as if they were dying..
My day had started like any other, I was up at 5 packing lunches and backpacks, while trying to gulp down some coffee. I had an appointment at the office later, so I spent a few minutes standing in front of my closet perplexed and sighing. I looked in the mirror, briefly noting the major…
The Little Things
(The moving truck arrived so there are currently giant men and 497 boxes all over my house. Jack is in a corner screaming, and the dog peed on the floor. Such is life, eh? Needless to say, I’m reposting again. I PROMISE to write new stuff next week–you know, when I can feel my legs…