Category Archives: Cerebral Palsy

Holiday Carols Were Not Written for Us

I have to tell you, I am a huge sucker for holiday music. I love hearing it while I shop in the grocery and when I’m in the car. I dream of falling snow flakes and cozy fires. I actually know all the verses of many traditional hymns and get mad when artists don’t sing…

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The Weary Woman..

The other day, I was overcome with emotion when I read what our friend Tammy said on her blog. (I’ll wait for you to come back…) This is such a sensitive topic. And one that is so often overlooked. We, regardless of situation, are still human. We have bad days. We have moments when we’re…

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A Picture is Worth 1,000 Words

I’ve been a little slack at posting here. And today, I’m leaving you with a picture that I found and I want to adapt it to be my new mantra. The reason for the short post today is: I am currently in ¬†Wisconsin at the Institute for Patient and Family Centered Care conference. Only 1…

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2 Years Later, How Do I feel?

Saturday marked the 2 year anniversary since Jillian was diagnosed with Cerebral Palsy. Those first few days were a blur. Focusing mostly on survival and knowledge. I would stay up super late (like 3am) to research on how I could “fix” this problem. Oh poor naive me. There is no “fix”. We just have to…

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A Dream Is A Wish, Your Heart Makes

As parents, we all dream about what our children’s future will be like. Will they be happy? Will they get married? Will they make me a grandparent? I’m a dreamer, I always have been and I always will be. Lately, I’ve been having a lot of uncertainty about how Jillian will grow up. I’m not…

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Post-IEP Discussion..

Wednesday was Jack’s IEP. Let me give you a little back story here. Jack’s “teacher” is¬†a special education professional, who routinely wears fake hair and loud (loud isn’t the best adjective, but that’s all I can come up with) jumpers/sweaters. We refer to her as The General, because, quite frankly, that’s how she acts. Things…

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Beginning to Loath The IEP

As special needs parents, we all find ourselves fighting for our children. (Even ‘typical’ parents do.) Adam and I often look at each other and comment that raising a special needs child shouldn’t be so hard. Why are there so many hoops to jump through? I’m tired just trying to keep up with the girls….

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I Went to the Dark Side…

I did it. I went to the Dark Side. All this time, I’ve been super vocal about the difference between being an advocate and being a…. well, you know. Yesterday, all that changed. (To read the whole drama, go here) I felt bad about it all day. I felt like I had worked so hard…

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What to do?

I have a few issues, just like everyone else. However, my current giant flaw is my inability to be mean. Seriously, I’m totally a “tell it like it is” kinda girl, but I can usually say it with as much grace as I can muster. I don’t like to hurt people’s feelings or make them…

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Botox Saga Continues

As if it couldn’t get any worse. After fighting from March until May for Botox injections, we secured a donation from the manufacture in Canada for one round. Our hopes were to show our insurance company that the injections worked, that they would reconsider their decision. NO such luck. They wouldn’t even READ the letter…

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