Today we’re checking into Children’s Hospital for J’s biannual EEG. We’ve been anticipating this for…well, for about 6 months, since his last EEG so we can get a better grasp of what’s going on for him. His last EEG, July 21, 2010 showed him still having 50% of his REM in spike and wave activity,…
Category Archives: Conditions and Diseases
12 Days of Christmas
Cerebral Palsy style?? Let’s see if I can make it work! On the first day of Christmas my daughter gave to me: a HUGE stack of paperwork On the second day of Christmas, my daughter gave to me: 2 AFO’s and a HUGE stack of paperwork. On the third day of Christmas, my daughter gave…
Riding the Roller Coaster
No, this isn’t a post about the amusement park. The kind of roller coaster I’m talking about isn’t fun, and the people lining up to ride it are few and far between. The roller coaster I’m talking about is the one that makes me feel exhilirated when my child learns a new skill, and sad…
What Do You Worry About?
Like most Mothers of children with special needs, I worry about doing all that I can to foster the development of my beautiful 5-year-old boys with Down syndrome. For me, worry leads to action and action to change. But lately, there’s been talk in the blogosphere about the usefulness of such worrying. In one post, it was…
My dream…
I have this dream for all of us, I dream that one day we all can walk in to “Our Toy Store” and find our kids playing in the aisles. That there are toys available to try and see if they’d work for our children. Where we’re not ordering from catalogs at home, but instead…
All I Want For Christmas
Despite my usual annoyingly cheerful disposition, I’m feeling a little Scrooge-like this year. Bah Humbug. See, this year, Ian will be eight. Every year that passes is another slap in the face, another year that he gets further and further from his milestones. Another year he grows slightly taller and people will no longer mistake…
I Can’t Believe I Said It!
I said it. I can’t believe I said it! The mother of all no-no’s and I used THAT word! I didn’t just use it in a more innocent way when it is directed at an object or situation, but to actually describe another individual. The word hadn’t even completely escaped my mouth when I realized…
Beauty in the Details
We live in a town that has many well-manicured homes and yards. The kind of place where this time of year brings out all of the Martha Stewart style holiday decorations – color themes, perfectly lit, matching sets – you get the idea. Well, with one eye on the increasingly busy calendar we hauled out…
bringing healing
**This post is from my blog, Thoughts from Holland. With our current adoption picking up speed, I went back and re-read posts from the days after we brought my two year old home. I worry about Will with each change we make in our family, whether it is adding a child or simply changing the…
I’m So Tired
I spent all week thinking about this post. And I have nothing. I’m too tired to think. This time of year I’m just spent. Physically and emotionally done. Thanksgiving. Hanukkah. Christmas. All take emotional tolls on me because I’m not just planning a fun holiday celebration, but also organizing how we’ll get through the celebrations….