Apologies for our absence. We were in the hospital. We made it out for Christmas just in time. I’m still getting over the shock of it all; Ivy lost her brand new port, not five months old and now has another PICC. She was septic and although I am thankful that her heart and her…
Category Archives: Day In And Day Out
Where Did our Friends Go?
For us, one of the most surprising and disappointing aspects of parenting a special needs child was the loss of our friends. It seems strange that when you need them the most, they are nowhere to be found. Where did they go … and why?
Are Perseverations A Deeper Thought Needing A Better Answer?
I’ve learned not to look too deeply into what J’s thinking. Beyond what his needs are, what may cause or did cause a meltdown and how to keep him entertained and growing without meltdowns is about as far as I’ve gone. We’ve been in such a similar space with similar likes and dislikes for so…
Got Anger? Four Ways to Diffuse the Explosions
Some people are mild-mannered. I am not one of those people. My blood boils on a regular basis, sometimes for valid reasons, sometimes not. But frequently nevertheless. Today, I crashed into a moment of anger when my daughter stood up an peed on the floor in my car on the way home from an errand….
Merry Christmas!
As I said last week, Jillian gave me one of the best Christmas presents ever. It even was better than my easy bake oven! That being said, I did have a very nice holiday with my family! It is a very weird year this year, only because we usually fly to Nova Scotia on Boxing…
A Toy Story
Over the years, many of Precious’ toys have been of the developmental nature. Toys younger than her actual age. We’ve kept a lot of the toddler toys in the house even though Precious turned 5 recently because she still has trouble with them sometimes and we can use them as teaching aids. As the third…
Peace in the Wee Hours
Ah, the wee hours of the morning, when the sun and my children are still asleep — where they stir quietly, smiling in their sleep… dreaming of sailing the high seas on their new pirate ship… in another world — there is resounding peace here in my world. Everything is as it should be. No one is judging us. No one…
Tis the season…
When we’re at the store, my son and I, I wonder what people think. Sometimes they tell you exactly what they think, ready or not here it comes. It’s apparent that my son has a physical disability, the wheelchair is a clear give away, but sometimes we don’t heave and hoe that into the vehicle….
5MSN Virtual Christmas Dinner!
Merry Christmas Eve!!! Welcome! Come on in! Let me take your coat…. Here’s a little squirt of hand sanitizer for you…. We have a beautiful dinner laid out for us…serve yourselves and enjoy! While y’all are eating, I thought we could all share a story of hope. After all, that’s what this season is about—hope!…
Top Ten Things I am a Little Tired of Hearing
I wish I had a dollar for every time I’ve heard the following ten statements. Because I’d be a rich, rich woman indeed and there’d be no scrounging to get therapy stuff for my kid. Ahem. Without further ado: G-d doesn’t give you more than you can handle. Look, I understand the intent. I really…