There. I said it. I read here earlier this week about birthday parties. That made me think how much I get stressed worrying about birthday parties. In January, our oldest daughter turned 4. Lauren had decided she wanted to go bowling. But on one condition. Jillian HAD to be able to participate. (Even though they…
I’m still trying to figure out twitter. Can’t decide if it’s really useful for me or not. I’m trying out HootSuite which makes it more accessible, but still kind of overwhelming. Anyway last night as I was scrolling through the most recent tweets two words jumped out at me. Perhaps they would have jumped out…
I originally posted this years ago when I blogged under the name “Mia Hysteria”…yes, you know, General Hysteria. Don’t go looking, that site is no longer up. I’ve since come to peace with our family’s life and what was that blog’s purpose is no more. Digressing…. But this piece still holds true for me. Does…
What is it about the wheelchair that attracts people? Some times it’s the looks but other times there are full blown conversations with people the randomly say things (not all bad!) My first outing with my son and his wheelchair was to a restuarant. I was meeting a friend for breakfast. We were eating and…
It’s true. And I hate, despise, and abhor being the whiner. I’m busy…like really busy. I home school my 11 year old. I take care of Jack and his daily routine of medications, tube feedings, and breathing treatments. I teach two night classes–one of which has a clinical component. For the next 2 weeks I…
I attended a gathering of parents with special needs children a couple of nights ago. There are a lot of things stirring in our community that bore discussion, but this phrase, spoken by one of the Dads there stuck in my head. We all want the same things… Our children may be different in various…
Finding my desk seems to be a monthly routine. Find it. Bask in the warmth of my clean office, with my most favorite dinning table turned into desk in plain site, no longer engulfed with the bills paperwork…until the month comes around and I fulfill the same process again. It has its perks. This month…
You know who you are… your the mom that most can’t relate to, the mom that takes her job seriously. The mom that’s misunderstood more than understood. The one that stands up for what’s right and wrong. The one that is the child’s first teacher and strongest advocate. You are the REAL EXPERT of your child….
So I was thinking, draw 3 circles on a piece of paper. One inside the other, so really you have 3 cirles around each other(as pictured) The inner circle is our children, this is their culture of being a child with special needs. The middle circle is us, the parents. We’re not in the…
Sometimes I wish I wasn’t so tuned in to the special needs community. Sometimes I wish I could just get on Facebook and see what goofy things people are doing, even if it’s so mundane as “I’m getting a haircut this afternoon.” But, in my group of friends, that’s not always possible. I have many…