Sleep is for the Weak. Yes. Someone knew what they were saying when they developed that title for a book. For 6 years, we didn’t sleep. I mean…Didn’t. Sleep. That’s part of the unofficial, official symptoms of Landau-Kleffner Syndrome (epilepsy). For us, it means putting J to sleep for 2 hours, he wakes, tosses and…
Category Archives: Family Life
Part Two – Helping Special Needs Siblings Thrive
Plugging my younger two kids in to other things they love breaks my heart. It means having them, with their playfulness, normal range of emotion, and snuggliness out of the house, leaving me with only the most challenging kids. It means being in the place I least prefer and that can make me really mad. And lonely. And resentful. Unless I actively grieve in healthy ways…
Smooth
Is it Saturday already? At times, this week has flown by. And at others, it has dragged on. Especially from 5 a.m. to about 11 a.m. on Tuesday morning when Tim had surgery on his foot. He plays in an adult soccer league and a week ago Tuesday, he got kicked in the foot. That…
Equipment.!
Equipment. ! We’ve been waiting since the beginning of July for a piece of equipment to be approved by medicaid. Today I called to check on it. I know I probably should have done it earlier, but really it’s not unusual to wait for this company. To get my son’s Wheelchair it took 9 months…it…
How Do You Deal With The Holidays?
Yesterday was Thanksgiving day in the US. The day traditionally set aside for visiting or entertaining family and friends, eating boatloads of turkey, mashed potatoes and gravy and all the foods that oddly enough, I don’t find appealing at any other time of the year. For some, it also means watching football all.day.long. For the…
Santa Schmanta…
2 weeks ago, my husband was out of town on business. It happened to be his birthday coming up, so I took my kids to the local mall for some Papa Birthday Buying. We stepped in to the Wonderful World of Bass Pro Shops and were met with Santa’s Wonderland of Stuffed Animals (and I’m…
Home for the Holidays
Every year, my larger-than-life family gets together for holidays, just like the rest of the world. I have three brothers and three sisters and their spouses, plus multiple nieces and nephews, which means a gathering with “just us” and it’s thirty to forty people. We used to take turns hosting the gatherings. Used to. As…
Happy Thanksgiving
Hello, I created a short video just to say thank you for visiting and being a friend. I hope you have had a wonderful year and are able to count the blessings today. I know many folks have had difficulties over this past year and I hope you are still able to find your blessings…
Preparing to be Thankful
Thanksgiving will be different for me this year. For several years running it has not been my favorite holiday. It was stressful for many reasons…not that I haven’t had my reasons to be thankful, but somehow they seemed shabby in comparison to what I had expected. This year I have determined to just be thankful,…
Hold My Hand
I’m sure I’m not the only one who takes Thanksgiving week as a chance to reflect on all the things I’m grateful for in my life. This year, the first year since my son’s official autism spectrum diagnosis, has not been an easy one. There have been more lows than highs. I’m well versed in…