Enjoying the warmth of the moment, the neighborhood is outside. A few adults finding conversation, a flock of young kids finding themselves energized in a game of kick ball. It’s safe, it’s warm, friendly and fun. Until… I like to say C is our kids’ favorite toy. He can play any game with enough zeal…
Category Archives: Cerebral Palsy
Special Needs Come & Go
I’ve been raising my identical twin sons — who happen to have Down syndrome — for nearly 6 years now. By all counts, they have “special needs”. We’re now in the process of confirming a diagnosis of Attention Deficit Disorder for my 9-year-old daughter who is also in our district’s gifted program. SHE too has “special needs”….
A Positive OT appointment!
We’ve had MANY therapists. We started with the usual suspects, early intervention physiotherapy, occupational therapy and a quick trip to speech language pathology (not to mention OTHER specialists like neurology, ophthalmology, orthopedic surgery, hypertonia clinic, etc) before Jillian wanted to prove everyone wrong and say “oh wait! Yes, I was delayed with babbling, but now I’ll…
Bug Off
My sweet little boy has a list of diagnoses a mile long—most of which I could care less about, but the doctors insist on fussing over. However, there is this one thing that causes me to worry incessantly, act a fool in public, and makes my husband roll his eyes (or maybe he’s planning an…
Our First Date in 2 years!
In my quest for “Me” time, Adam’s sister came to visit us this week. Before she arrived, I had asked if she would babysit for us. You see, Adam and I haven’t been out together since April of 2009. We used to have a regular babysitter who then moved and now I somehow lost a…
A Sensory Trip
Here in Northeast Ohio, it was a beautiful Friday. Today, I took my son and my mother on a little road trip. I’ll call it a sensory trip because it was so nice to be out with out having to think about the roads. Those miserable roads have been ice covered, snow covered, and the…
Sometimes? I secretly hoped for Downs.
I really love meeting other parents that have kids with special needs. I like people in general, but it is so nice to find another mom who can have empathy with certain areas of special needs children. I have just “met” Ellen, who blogs at- Stumbo Family Story. Ellen has 2 children with special needs….
Take time for…Me?
What does the phrase above even mean?! While I was still pregnant with Lauren, mothers a few times over always offered this gem of advice “Take time for you”. Ok. I get that. I was a person before I became a mother, makes sense. After Lauren was born, I wondered if those people telling me…
Unexpected Snow Days Require An Arsenal
Today is a snow day. I remember snow days fondly as days when the world was wide open. It was a free day to catch up and do whatever my childish heart desired; reading, sledding, throwing snowballs endlessly which would, for me, end up in freezing fingers needing swirls of mildly warm water to run…
If I’m still grieving, how does she feel?
I had tried to promise myself that I wouldn’t write about my best friend Nena or her son Glenn again, BUT, I’m still having a hard time with it. And it really has to deal with grief. If you want to read the first post, it’s HERE. I have to ask myself, if I’m still…