DH and I met a lovely woman at the support group we attended last fall. Her son is similar in age to Precious and has a similar diagnosis; mild developmental disability. I emailed Steph a month or so ago and she, her husband and her son came over and hung out with our family for…
Category Archives: Developmentally Delayed
The School Board
We’ve been working hard over the last month to get Precious into the right placement next year in Grade One. We got all our paperwork done and submitted it before the deadline and asked that she be placed in a special class at a nearby school. The local school team was amazing and they really…
The Heartache of Wanting (and Waiting)
There are lots of skills that a parent enthusiastically awaits mastery of by her precious children. Sleeping through the night, self-feeding, sleeping in their own bed and potty training are just a few of the hard-won battles, in my experience. A little bit of impatience is not uncommon and often can be a catalyst to helping our…
Which is Worse
I have a podcast I like to listen to. It’s for working mom’s who are “trying to do it all and then some.” The mom’s who run the podcast have two children each. Their kids are about the same age with the oldest being in 2nd or 3rd grade and youngest in kindergarten. Over the…
My Angel
I knew that my body was giving everything to this little person growing inside me. I knew my life would never be the same; that our lives would never be the same. There were no words to express the happiness I knew my belly contained. I knew that this little being was my angel; my…
At last! There is HOPE.
“There is hope for your child.” “And for your family.” Before you throw your computer across the room, bear with me for a moment. Because I’ve oft wanted to throw the computer (or throw up…) when people band-aided my heartbreak with platitudes over the years. So I understand. But today, after another hours-long appointment with…
It’s Official
After 5 years, innumberable doctor’s, therapist’s and specialist’s appointments, blood tests, x-rays, MRIs and on and on, Precious is no longer “developmentally delayed with a suspected developmental disability” but is officially developmentally disabled (aka ‘MR’) and we have the psychologist’s report to prove it. I wasn’t surprised when I heard the results, but I cried…
Adults with Special Needs
We went to the maple sugar bush this week as it was March Break for the kids. Part of the attraction of this particular sugar bush is the all-you-can-eat breakfast and the small farm they have with a pig, some sheep, a goat, a cow and some chickens. We headed out early on Thursday morning…
Three Little Words
I know it’s not perfect, the medication J is on. But it’s doing something. It’s helping to quiet the activity in his brain…sometimes. It’s helping him to find more words, helping the words to find their place within a sentence, to communicate. I talk about watching our children’s achievements, however small, but sometimes these achievements…
Is that too much to ask?
This week my husband’s grandmother passed away. She was 93 year old, never took more than a multi-vitamin in her life. She did however, several years back, begin her journey with Alzheimer’s Disease. It was a long journey, spending 10 years in a nursing home. She had 5 children, 12 grandchildren…and so many great grand…