I’ve missed posting the last two weeks, my apologies, but unfortunately I have a “teacher proof” excuse. I’m not going to rehash all the details of the last horrendous two weeks, the fears, the tears and the anger. In a nutshell: my son went into the hospital Thanksgiving night for a suspected shunt malfunction which…
Monthly Archives: December 2010
12 Days of Christmas
Cerebral Palsy style?? Let’s see if I can make it work! On the first day of Christmas my daughter gave to me: a HUGE stack of paperwork On the second day of Christmas, my daughter gave to me: 2 AFO’s and a HUGE stack of paperwork. On the third day of Christmas, my daughter gave…
Riding the Roller Coaster
No, this isn’t a post about the amusement park. The kind of roller coaster I’m talking about isn’t fun, and the people lining up to ride it are few and far between. The roller coaster I’m talking about is the one that makes me feel exhilirated when my child learns a new skill, and sad…
Peace
This has been a difficult year for our family. I’ve been praying for peace and for a break. And after watching the following video–posted by another Spina Bifida mom on her facebook page, I realized how selfish I’ve been. We are blessed. So very blessed. And I realized that despite the differences in our children’s…
What Do You Worry About?
Like most Mothers of children with special needs, I worry about doing all that I can to foster the development of my beautiful 5-year-old boys with Down syndrome. For me, worry leads to action and action to change. But lately, there’s been talk in the blogosphere about the usefulness of such worrying. In one post, it was…
My dream…
I have this dream for all of us, I dream that one day we all can walk in to “Our Toy Store” and find our kids playing in the aisles. That there are toys available to try and see if they’d work for our children. Where we’re not ordering from catalogs at home, but instead…
Goodbye Betty, Martha and Norman
When I was young and naive, I had visions of how my life and home would look when I get married. I would have a wonderful husband, four beautiful children and a home that’s both lovely and inviting. This wonderful and handsome man I married would earn more than enough, not only to provide for…
Bumper Stickers
Wednesday, I was driving my daughter to swim team practice. At a stop light, I looked up and the car in front of me had about 37 bumper stickers on the back of it. (I am not a fan of bumper stickers. I think it has something to do with the fact that I once…
All I Want For Christmas
Despite my usual annoyingly cheerful disposition, I’m feeling a little Scrooge-like this year. Bah Humbug. See, this year, Ian will be eight. Every year that passes is another slap in the face, another year that he gets further and further from his milestones. Another year he grows slightly taller and people will no longer mistake…
I Can’t Believe I Said It!
I said it. I can’t believe I said it! The mother of all no-no’s and I used THAT word! I didn’t just use it in a more innocent way when it is directed at an object or situation, but to actually describe another individual. The word hadn’t even completely escaped my mouth when I realized…