When Ian used to have school breaks, it was really rough. On all of us. His Early Intervention Provider had a really funky schedule and it was not uncommon for him to have 2-3 weeks off during winter holidays, spring break and summer. For a typical child, 2-3 weeks off is difficult. For a child…
Category Archives: Conditions and Diseases
Doing what we already know…
Last Friday I reached a limit of frustration trying to get my daughter out the door to school. Three days a week I juggle all three kids in the morning, to get everyone fed, dressed, packed and dropped off at their respective schools. On Friday Daddy had to leave early for a meeting in the…
Three Little Words
I know it’s not perfect, the medication J is on. But it’s doing something. It’s helping to quiet the activity in his brain…sometimes. It’s helping him to find more words, helping the words to find their place within a sentence, to communicate. I talk about watching our children’s achievements, however small, but sometimes these achievements…
Where Red Tape Makes me Lose my Mind
I’m finally on the mend after the weirdest virus/cold I’ve never had! Thankfully, I learned well from my girls and I decided to share with them. In all honesty, I really need to teach them what IS appropriate to share and what isn’t. And I should probably take that lesson myself. Since Jillian was born,…
BELIEVE! No One Can Know the Limitations of Another
We are in the process of formalizing a diagnosis of Attention Deficit Disorder with secondary Anxiety Disorder (at-risk for depression) for my “gifted” 9-year-old daughter. For me, this process began more than 2 years ago, brought to light by the abusive treatment she suffered at the hands of her 2nd grade teacher who drove her to tears…
Is that too much to ask?
This week my husband’s grandmother passed away. She was 93 year old, never took more than a multi-vitamin in her life. She did however, several years back, begin her journey with Alzheimer’s Disease. It was a long journey, spending 10 years in a nursing home. She had 5 children, 12 grandchildren…and so many great grand…
The Safety Dance
Well, our little Houdini is at it again. We try to keep it safe and locked down around here, but the truth is he is getting older and bigger and smarter and he’s figuring it all out. See, most devices and locks and whatnot are for BABY PROOFING. Not IAN PROOFING. Even autism-specific products. We…
Sleep Perchance to Dream
Last night was one of those nights. Daddy had a meeting so I put all the kids to bed, then laid on the floor doing Facebook until the twins dropped off to sleep, except I dropped off to sleep, too. I know I’m really wiped out when I wake up on the cold floor at…
Reflections In Spring…We’ve Come A Long Way
How are we doing? It’s on my mind. Not for any particular reason except that spring is around the corner, and this is the kind of thought process I go through each spring. You see, spring is a time of renewal and while others clean, which I might find a way to get my hands…
Waiting. And why it’s not so bad.
Raise your hand if you love to wait! Yeah, me neither. We spend lots of time waiting as parents with special needs kids. Waiting for things like doctor’s visits, referrals, our children’s therapies to take, results of the last lab work-up… For the past week we’ve been waiting with one of our daughters – waiting…