Last Friday I reached a limit of frustration trying to get my daughter out the door to school. Three days a week I juggle all three kids in the morning, to get everyone fed, dressed, packed and dropped off at their respective schools. On Friday Daddy had to leave early for a meeting in the…
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Written on
March 15, 2011 by
Lee
I have witnesses a worrisome trend—couples divorcing after their special needs child reaches age 18. When the mom retains custody of the child, what is the continuing responsibility of the father? Will he remain involved in the life of the child? Will he continue providing financial support? Will he take the High Road?
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Written on
March 15, 2011 by
Laurie
As special needs parents, we give up a lot. Our time. Our energy. Some of our relationships. Our vision of what might have been our lives as a family. With all the things we give up, it would be really darned nice if we didn’t fall under the same rules of slowing middle-aged metabolism, so…
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Written on
March 12, 2011 by
Tammie
This week my husband’s grandmother passed away. She was 93 year old, never took more than a multi-vitamin in her life. She did however, several years back, begin her journey with Alzheimer’s Disease. It was a long journey, spending 10 years in a nursing home. She had 5 children, 12 grandchildren…and so many great grand…
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in
Advocacy,
Cerebral Palsy,
Communication,
Conditions and Diseases,
Day In And Day Out,
Dealing With Public Perceptions,
Developmentally Delayed,
Education,
Epilepsy,
Family Life,
Fine Motor,
Gross Motor,
Medications and Treatment Options,
Problem Solving,
Raising Awareness,
Resources,
Self Care,
Social Skills,
Support,
Therapy
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Last night was one of those nights. Daddy had a meeting so I put all the kids to bed, then laid on the floor doing Facebook until the twins dropped off to sleep, except I dropped off to sleep, too. I know I’m really wiped out when I wake up on the cold floor at…
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Written on
March 8, 2011 by
Laurie
Raise your hand if you love to wait! Yeah, me neither. We spend lots of time waiting as parents with special needs kids. Waiting for things like doctor’s visits, referrals, our children’s therapies to take, results of the last lab work-up… For the past week we’ve been waiting with one of our daughters – waiting…
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Written on
March 5, 2011 by
Tammie
We have been part of the “Ick” people. We try SO hard not to get anything. To not be exposed to any others that are sick, have been sick recently, or that have been exposed to sick. I know impossible. But we really do try to stay germ free. Then it HIT and it didn’t…
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The Green Monster is not just the outfield wall at Fenway Park, people! It’s this pit in my stomach. The pit that grows jealous, envious, and resentful sometimes. Sometimes usually means daily. Mostly. Sometimes. (This is the part where I bear my soul and come clean, so please don’t chew me up and spit me…
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Written on
March 1, 2011 by
Laurie
My husband jokes that it takes a military-grade logistics team to plan date nights or get together mid-day for lunch with a friend! That’s not far from the truth. One of the hardest parts of raising kids with special needs is the isolation. It’s just really, really hard to maintain close friendships when life is…
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Written on
February 22, 2011 by
Gina
Today, early in the morning, we’re headed out for an eval. B is my concern. He’s my #3, my last, my Momma’s boy. I love him as I love the others and I’ve watched him closely, as I’ve watched O. Most of the issue centers around his speech, his annunciation or lack of it. There…
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