“Out of curiosity, how does his version of ESES (J’s form of epilepsy) compare to other kids you’ve seen with it?” This is my question to the neuropsychologist in the neurology department – designated specifically for epilepsy patients – that we met with yesterday. I don’t know why I ask these questions. We have our…
Monthly Archives: July 2011
Do you still follow your dreams?
Do you still nurture your own dreams? I’m headed across the country to She Speaks in North Carolina next week. It’s the next step in my journey toward a dream. In preparation, I’ve been thinking a lot about dreams and purpose. Hours have passed writing a book proposal, working on talks for the speaker evaluation…
My Love/Hate Relationship with Botox
And since I’ve blogged about it a LOT, I’m sure you all are beginning to hate it too! (To bring you up to speed-March 14 May 5, and May 9.) The “typical” dosing schedule for children receiving Botox injections are usually every 6 months. Since Jillian plays by her own rules (which I swear is…
Preparing for the Election
Other than the time I ran for a seat in the student association of my university, I’ve never been more engaged in an election before. In Ontario, Canada, there is a provincial election coming up. Since the provinces manage health, education and social services, the government that gets formed this time will more important to…
No, Not, won’t, can’t…The Negativity disease
I’m on facebook a lot…so much it’s an addiction, I think. But there are people that I connect with on there that I wouldn’t necessarily be able to otherwise. I have over 200 friends (and I actually know these people <surprisingly>). But I find that there are people that post Negative thoughts a lot, I…
Educating the Medical Community…
So many times, as I’ve said before, we confuse the line between being ugly and being an advocate. Being an advocate is rooted in being educated–therefore, we are then prepared to educate others. Unfortunately, the loud, brash family is also going to get the attention (and they’ll do it claiming advocacy). This is not advancing…
Grandma’s House
We’re back at my dear mother-in-law’s house for another week, awaiting the results of her evaluation from a wonderful program that is helping us get a handle on what is affecting her. Things are going much better than our last visit, but still challenging. I spent most of the day yesterday cleaning out her pantry….
NOT one of the girls …
What happens when you are the only man in a group of special-needs moms? How can you keep from becoming one of the “girls?”
Would you let your child scale a mountain?
She grabbed the rock above her and pulled herself up. The water rushed cool and quick over our soaked shoes. Steadying herself, my 5 year old reached for the next rock a few feet above her. In the high altitude, we both breathed hard, but her determination pushed us farther as we climbed the waterfall…
I don’t baby my children
I recently had a visit with my grandmother who was visiting Ontario from British Columbia (to bring you up on Canadian geography, BC is on the west coast and Ontario is practically in the middle of the country) Being the nice granddaughter I am, I drove 5 hours to go see her in Ottawa. Let’s…